Ms. Jordana Schmier, Senior Managing Scientist in Exponent’s Health Sciences practice, will be presenting the poster, “Stakeholder engagement in identifying the burden of illness of geographic atrophy,” at the International Society for Quality of Life Research’s (ISOQOL) 24th Annual Conference. The conference will be held in Philadelphia, Pennsylvania October 18-21, 2017.
The poster describes a series of studies focused on identifying issues relevant to patients with geographic atrophy (GA), an advanced form of age-related macular degeneration (AMD). The first study was a literature review to explore what is known about GA and AMD in terms of patient-reported outcomes and economic burden. The second study included semi-structured interviews with patients, caregivers, and healthcare providers. The interview inquired about known topics relevant to patients with GA and AMD but the semi-structured nature allowed respondents to raise previously new topics. The findings from these studies are being used to design a prospective study.
ISOQOL is a non-profit society to advance the scientific study of health-related quality of life and other patient-centered outcomes to identify effective interventions, enhance the quality of health care and promote the health of populations. The 2017 conference theme is "Embracing Complexity: Using Patient-Reported Outcomes to Generate Real World Evidence" and the conference will provide a platform to discuss the challenges for the field with regards to theory, methodology and implementation of results in health care policy and practice.